Month: October 2021

Breast Cancer Is a Complex Journey

Breast Cancer Is A Complex Journey  
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By Faustine Williams Ph.D., M.P.H., M.S.
Stadtman Tenure-Track Investigator and NIH Distinguished Scholar
Health Disparities & Geospatial Transdisciplinary Research Program
Division of Intramural Research
National Institute on Minority Health and Health Disparities

Photo of Dr, Faustine Williams Although we have seen substantial progress over the last 30 years in breast cancer incidence and outcomes, geographical and racial/ethnic disparities across the cancer care continuum persist.1, 2  As shown in the NIMHD research framework, the factors contributing to these disparities are complex, numerous, and interrelated sets of individual, interpersonal, community, and societal determinants.3 However, early breast cancer detection or diagnosis and treatment initiation can lead to better outcomes. For example, the 5-year relative survival rate for localized-stage disease that has not spread to other sites/organs is 99.0%.4

Despite the advances in medicine and technology, cancer is still the word no one wants to hear. Years ago, when I interviewed breast cancer survivors about their experiences, they described it as a family experience because they could not have gone through it without the support from family and friends that helped them cope.5 The journey from diagnosis and treatment to survivorship does not just touch the affected individual, but family, friends, and loved ones as well. I thought I understood their stories, but I was wrong until I became the de facto caregiver to my friend/sister Yaa. Continue reading “Breast Cancer Is a Complex Journey”

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NIMHD Lauds New Awards on Innovative Health Disparities and Health Equity Research

NIMHD Lauds New Awards on Innovative Health Disparities and Health Equity Research
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By Eliseo J. Pérez-Stable, M.D.
Director, National Institute on Minority Health and Health Disparities

Photo of Dr. Eliseo J. Perez-Stable, NIMHD DirectorWe at the National Institute on Minority Health and Health Disparities are excited and proud to be a part of the Transformative Research to Address Health Disparities and Advance Health Equity initiative, a new effort coordinated by the NIH Common Fund. This new set of 11 grants provides roughly $58 million over five years to support innovative, creative translational health disparities research projects across the country. This new initiative speaks directly to NIMHD’s mission to improve minority health, reduce health disparities, and promote health equity, and encourages bold new solutions to solve enduring problems.

Despite scientific and technological discoveries that have improved the health of the U.S. population overall, racial, and ethnic minority populations, socioeconomically disadvantaged groups, underserved rural populations, and sexual and gender minorities in the U.S. share an unfair burden of diseases such as diabetes, heart and respiratory diseases, HIV, and obesity. The recent COVID-19 pandemic has further underscored how disease can disproportionately affect vulnerable populations the hardest.

In our work, characterizing the drivers of health inequities demands a better understanding of social determinants of health, complex underlying causes of health disparities, and effective interventions specifically designed to reduce disparities in these populations. Continue reading “NIMHD Lauds New Awards on Innovative Health Disparities and Health Equity Research”

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Storytelling Through Narrative Medicine: Measuring the Lived-Experiences of Black Women’s Reproductive Health

Storytelling Through Narrative Medicine: Measuring the Lived-Experiences of Black Women’s Reproductive Health
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By Shameka Poetry Thomas, Ph.D.
Postdoctoral Fellow
NIH Intramural Research Program
Health Disparities Unit
Social and Behavioral Research Branch
National Human Genome Research Institute

Dr. Shameka Poetry Thomas

Dr. Shameka Poetry Thomas

My grandmother was a traditional healer and a medicine-woman in Georgia’s rural South. Although I grew up in Miami’s Opa-Locka (a small urban neighborhood tucked between Miami-Gardens and the cusp of Hialeah / Little Havana), I spent most summers near middle Georgia’s farmland, listening to my grandmother. I observed how grandmother, who did not have a Ph.D., gathered Black women in circles. She described the process of listening to Black women’s pregnancies, births, and wellness experiences as “chitchatting and holding space.

Learning how to ‘hold space’ is what draws me to narrative medicine. My first dose of learning how to conduct narrative medicine, I suppose, came from my grandmother. This methodology (before I knew it was such) was simply understood as the process of sitting in kitchens and beauty salons in the South—just listening. During childhood, I was merely curious about how Black women described their pregnancies, births, and reproductive health—from their side of the story. Thus, when it came to reproductive health, my grandmother taught me a powerful tool: how to “hold space” for people’s narratives. Continue reading “Storytelling Through Narrative Medicine: Measuring the Lived-Experiences of Black Women’s Reproductive Health”

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